Evidence Library

Title: Involving patients in clinical research: the Telescot Patient Panel
Author: Fairbother, P., McCloughan, L., Adam, G., Brand, R., Brown, C., Watson, M., Cotter, N., Mackellaig, J. & McKinstry, B.
Date Published: 2013
Reference: Health Expectations doi: 10.1111/hex.12132. [Epub ahead of print]
Are service users or carers authors: Yes

Abstract: The Telescot study aimed to explore the feasibility of using home telemonitoring of blood pressure for people affected by stroke. The research team set up a Patient Panel to advise on the delivery of the research. The protocol had already been agreed. The Panel made a difference by: • improving the information given to potential participants • commenting on the challenges for stroke patients using the technology required for telemonitoring which helped with the design of the intervention • informing the development of the qualitative study that explored participants’ experience of the telemonitoring. They also contributed to the analysis of this data. • advising on ways to communicate the results to a wider group of stakeholders. The research team commented on the extra demands on time and resources, which they had not built in to their original application. However they found the input very valuable and despite some initial concerns, are planning to have more involvement in their projects in future.

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Categories: health
Designing research
Managing research
Analysing and interpreting
Writing up and disseminating
impact on research
impact on service users involved
impact on researchers
impact of public involvement
journal article

Date Entered: 2013/10/28

Date Edited: 2013/10/28

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