Evidence Library

Title: The development and initial validation of a questionnaire to measure help-seeking behaviour in patients with new onset rheumatoid arthritis
Author: Stack,R., Mallen, C., Deighton, C., Kiely, P., Shaw, K., Booth, A., Kumar, K., Thomas, S., Rowan, I., Horne, R., Nightingale, P., Herron-Marx, S., Jinks, C., DELAY Study Syndicate, Raza, K.
Date Published: 2014
Reference: Health Expectations doi: 10.1111/hex.12203. [Epub ahead of print]
Are service users or carers authors: Yes

Abstract: This article reports on the involvement of people with rheumatoid arthritis (RA) in the development of a questionnaire to explore why patients delay seeking help at the onset of RA. The patients were involved through focus groups. They rephrased questions, added questions and removed irrelevant items. They also divided the questions into key themes relevant to patients. The questionnaire was also reviewed by health professionals. Overall, the involvement helped to increase the relevance of the questionnaire, so that it measured what patients thought was important to measure.

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Categories: health
Designing research
impact on research
impact of public involvement
journal article

Date Entered: 2014/07/15

Date Edited: 2014/07/15

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