Putting it into Practice

Title: Third sector facilitation of lived experience in research: A case study of service user and carer involvement in the PRIMROSE project
Author: Gray, B., Larsen, J. and Faulkner, A.
Date Published: 2013
Reference: Journal of Mental Health Training, Education and Practice, 8(3), 141-151
Are service users or carers authors: Yes

Abstract: This article reports on the impact of a Lived Experience Advisory Panel (LEAP) that was set up to inform the development of the PRIMROSE project. The project aims to improve the physical health of people with severe mental illness through a GP-practice based intervention. The LEAP is made up of 27 service users and carers with experience of mental illness. It is supported by a service user researcher employed by Rethink Mental Illness. The practical measures that have contributed to the success of the LEAP include: • setting up a small sub-group to contribute to specific tasks in the project development • ensuring good communication with all LEAP members through newsletters and a project blog • recruiting an independent chair to help maintain the group’s autonomy. The model of working with a third sector organisation has worked well – particularly in recruiting members of the LEAP, and providing useful communication channels to disseminate the findings.

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Categories: journal article
service users and carers
research commissioners
mental health survivors
paying service users for their involvement
description of involvement in a research project
identifying and prioritising topics
designing of research
recruiting people to be actively involved in research
chairs of groups involving service users
strategic level decision making
setting up a research panel
training and supporting service users
chairing meetings with service user members
staff in research organisations

Date Entered: 2014/08/19

Date Edited: 2014/08/19

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