Abstract: This article reports on the impact of a Lived Experience Advisory Panel (LEAP) that was set up to inform the development of the PRIMROSE project. The project aims to improve the physical health of people with severe mental illness through a GP-practice based intervention. The LEAP is made up of 27 service users and carers with experience of mental illness. It is supported by a service user researcher employed by Rethink Mental Illness.
The practical measures that have contributed to the success of the LEAP include:
• setting up a small sub-group to contribute to specific tasks in the project development
• ensuring good communication with all LEAP members through newsletters and a project blog
• recruiting an independent chair to help maintain the group’s autonomy.
The model of working with a third sector organisation has worked well – particularly in recruiting members of the LEAP, and providing useful communication channels to disseminate the findings.
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Categories: journal article service users and carers researchers research commissioners mental health survivors paying service users for their involvement description of involvement in a research project identifying and prioritising topics designing of research recruiting people to be actively involved in research chairs of groups involving service users strategic level decision making setting up a research panel training and supporting service users chairing meetings with service user members staff in research organisations
Date Entered: 2014/08/19
Date Edited: 2014/08/19