Abstract: This article reports on the findings from a survey of service users involved in mental health research in the UK. The respondents included a range of people, from employed researchers through to volunteer service user representatives.
The respondents reported that their involvement had had a positive impact on the quality of research. In particular, they had helped identify topics and research questions, and contributed to research design. When involved in data collection, service users highlighted being able to reach ‘hard to reach’ groups and increasing the quality of information obtained in interviews and focus groups by ensuring participants ‘felt understood’. More generally, they felt their presence challenged academics to consider alternate worldviews.
The majority of respondents had found their involvement to be very positive. It had provided them with a sense of purpose and belonging, and enhanced their self-respect. However, a small minority felt involvement had had a negative impact on their mental health. This was due to the pressure of work, exposure to distressing material or an experience of workplace conflict.
External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Click here
Related entry: none currently available
Categories: health Identifying topics, prioritising and commissioning Designing research Undertaking research Analysing and interpreting impact on research impact on service users involved impact on researchers impact of public involvement reflecting on public involvement in research journal article
Date Entered: 2014/08/19
Date Edited: 2014/08/19