Abstract: Aim: To assess the extent and value of mental health service user (MHSU) involvement in research in England.
Method: A review of the academic and grey literature from 2002.
Findings: Involvement of MHSU adds value to research, also benefiting everyone involved. Four gaps in the literature were identified:
1. Lack of evidence of researchers’ experience of involvement of MHSUs.
2. Lack of recognition that many people involved in research may hold more than one role, for example many researchers are carers and MHSUs but may not disclose this information.
3. Carers are not identified separately from MHSUs, if they are included at all.
4. MHSU researchers could contribute to research that is not about mental health.
Conclusions: Recognising the multiple roles and identities that exist for everyone involved in research has the potential to help with the redistribution of power necessary for effective involvement. Without this recognition, people tend to categorise themselves as belonging to one or other group (researchers, or researched) and the power struggle between the groups continues.
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Categories: health public health social care Identifying topics, prioritising and commissioning Designing research Managing research Undertaking research Analysing and interpreting Writing up and disseminating impact on research impact on research ethics impact on service users involved impact on researchers nature and extent of public involvement in research impact of public involvement reflecting on public involvement in research journal article Recruitment
Date Entered: 2014/08/19
Date Edited: 2014/08/19