Evidence Library

Title: Consumer involvement in health research: A UK scoping and survey
Author: Mathie, E., Wilson, P., Poland, F., McNeilly, E., Howe, A., Staniszewska, S., Cowe, M., Munday, D. and Goodman, C.
Date Published: 2014
Reference: International Journal of Consumer Studies, 38, 35-44
Are service users or carers authors: Yes

Abstract: Aim: To provide an overview of the current extent and variation of patient and public involvement (PPI) in research in the UK. Method: Six research topics were selected to include a range of types of research and PPI. 838 studies on these topics (non-commercial studies, less than two years old) were contacted. They were asked to forward research documents (e.g. funding bids and protocols) for the scoping exercise, and also to take part in a survey about PPI. Findings: The most common PPI activity was membership of steering committees and reviewing patient information leaflets. However, there was very limited information about PPI in publicly available research documents. This makes it very difficult to know whether any plans for PPI are followed through and how different approaches might lead to different impacts. More routine recording of how PPI was carried out and what difference it made is essential to develop the evidence base.

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Categories: health
public health
social care
nature and extent of public involvement in research
journal article

Date Entered: 2014/09/30

Date Edited: 2014/09/30

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