Evidence Library


Title: Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: a modified Delphi study
Author: Snape, D., Kirkham, J., Preston, J., Popay, J., Britten, N., Froggatt, K., Gibson, A., Lobban, F., Wyatt, K. and Jacoby, A.
Date Published: 2014
Reference: BMJ Open, 4, e004217
Are service users or carers authors: No/Not Known

Abstract: Aim: To explore areas of consensus and conflict around the values underpinning public involvement. Methods: A modified Delphi exercise with researchers, members of the public, research managers, commissioners and funders. Findings/recommendations: There were high levels of consensus on many of the issues including, for example, the argument that members of the public have unique knowledge and expertise that is complementary to researchers and that members of the public should be involved in publicly-funded research and health-related research. However, there were also areas of conflict, for example on the issues of bias and representativeness, and divided opinion on whether public involvement makes research more ethical. The authors conclude there is a need for more training and support infrastructure to help researchers implement involvement, and for ‘best practice’ standards to help all stakeholders understand and evaluate different approaches.

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Categories: health
public health
social care
reflecting on public involvement in research
journal article

Date Entered: 2014/10/28

Date Edited: 2014/10/28

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