Abstract: Aim: To find out the extent of patient and public involvement within surgical research.
Methods: A systematic literature review. The quality of patient and public involvement reporting was assessed using the Guidance for Reporting Involvement of Patients and Public (GRIPP) checklist and guidelines for assessing the quality of patient and public involvement.
Findings/ recommendations: Eight articles were identified. They reported the following impacts of the involvement:
• identification of research topics
• influencing study design
• improving recruitment and retention in surgical trials
• helping with data collection
Some studies worked with research participants, using interviews and group discussions to find out about their experience of participation, subsequently using this information to shape consent procedures and study design. Others involved patients/ carers who did not take part in the research, and adopted a more collaborative approach, for example in a systematic review of surgical literature.
Overall, the quality of the reporting was suboptimal, according to the checklists used. For example, none described how patients/ carers were trained prior to involvement.
The authors conclude that patient and public involvement in surgical research is currently limited, but this may reflect limited reporting as well as limited activity.
External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Click here
Related entry: none currently available
Categories: health Identifying topics, prioritising and commissioning Designing research Undertaking research impact on research nature and extent of public involvement in research impact of public involvement journal article Recruitment
Date Entered: 2014/10/28
Date Edited: 2014/10/28