Evidence Library

Title: Sustaining patient and public involvement in research: A case study of a research centre
Author: Jinks, C., Carte, P., Rhodes, C., Beech, R., Dziedzic, K., Hughes, R., Blackburn, S. and Ong, B.
Date Published: 2013
Reference: Journal of Care Services Management, 7(4), 146-154
Are service users or carers authors: No/Not Known

Abstract: This case study of patient and public involvement (PPI) development examined the impact of long-term involvement on research at a primary care research centre in England. The centre set up a research user group (RUG) which discussed research proposals with researchers. They helped to assess whether studies were acceptable and feasible, commented on research design and reviewed research materials to make them easier to understand. The RUG members reported that involvement increased their skills and confidence, provided social support and helped them to feel useful during retirement. Researchers reported that involvement led to successful funding applications, improved team communication and enhanced the validity of their research instruments.

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Categories: health
public health
social care
Identifying topics, prioritising and commissioning
Designing research
impact on research
impact on service users involved
impact on researchers
impact of public involvement
journal article

Date Entered: 2015/04/27

Date Edited: 2015/04/27

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