Abstract: This case study of patient and public involvement (PPI) development examined the factors that led to sustainable involvement in research, at a primary care research centre in England. The centre set up a research user group (RUG) which discussed research proposals with researchers. The key factors contributing to long-term success were identified as: having a dedicated PPI budget; establishing stable centre infrastructure funding for PPI, rather than project-dependent funding; leadership from a senior academic who sits on the Institute’s Management Board and promotes the work of the RUG; a dedicated PPI co-ordinator who can explain the value of involvement to researchers; a support worker who supports the RUG members; flexible and informal approaches to meetings; adapting timetables and environments to meet the needs to RUG members; allowing time and space to develop relationships based on mutual trust and respect.
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Categories: journal article service users and carers researchers relevant to all service users general principles of good practice description of involvement in a research project identifying and prioritising topics review of research proposals designing of research setting up a research panel staff in research organisations General guidance on involving the public in research training and supporting researchers
Date Entered: 2015/04/27
Date Edited: 2015/04/27