Putting it into Practice

Title: Sustaining patient and public involvement in research: A case study of a research centre
Author: Jinks, C., Carte, P., Rhodes, C., Beech, R., Dziedzic, K., Hughes, R., Blackburn, S. and Ong, B.
Date Published: 2013
Reference: Journal of Care Services Management, 7(4), 146-154
Are service users or carers authors: No/Not Known

Abstract: This case study of patient and public involvement (PPI) development examined the factors that led to sustainable involvement in research, at a primary care research centre in England. The centre set up a research user group (RUG) which discussed research proposals with researchers. The key factors contributing to long-term success were identified as: having a dedicated PPI budget; establishing stable centre infrastructure funding for PPI, rather than project-dependent funding; leadership from a senior academic who sits on the Institute’s Management Board and promotes the work of the RUG; a dedicated PPI co-ordinator who can explain the value of involvement to researchers; a support worker who supports the RUG members; flexible and informal approaches to meetings; adapting timetables and environments to meet the needs to RUG members; allowing time and space to develop relationships based on mutual trust and respect.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Click here

Related entry: none currently available

Categories: journal article
service users and carers
researchers
relevant to all service users
general principles of good practice
description of involvement in a research project
identifying and prioritising topics
review of research proposals
designing of research
setting up a research panel
staff in research organisations
General guidance on involving the public in research
training and supporting researchers

Date Entered: 2015/04/27

Date Edited: 2015/04/27

Additional Info: