Abstract: Aim: To evaluate the impact of patient and public involvement (PPI) in research on patients using a quantitative survey.
Method: The survey questions were developed using a previously published theoretical framework for evaluating the quality of the involvement process from a patient/ public perspective. Twelve members of a Research User Group involved in translational research in primary care were asked to complete the survey.
Findings/ recommendations: There was a ceiling effect in that some people scored highly right from the beginning, so it wasn’t possible to detect any improvements in their experience over time. Some people left the user group and this was predicted by a decrease in their scores – but because it took 3-6 months of data collection to see a difference in scores, this didn’t help alert the researchers to any problems.
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Categories: public health impact on service users involved impact of public involvement journal article
Date Entered: 2015/04/27
Date Edited: 2015/04/27