Abstract: Aim: To determine an optimum model for involving service users in palliative care research.
Method: A consultation workshop with service user and researcher participants.
Findings/ recommendations: The users in the workshop wanted to their involvement to be more visible, to disseminate information about the difference their involvement made to projects. The researchers wanted involvement to increase productivity and the relevance and quality of their research. It was agreed that better involvement would be achieved by: being clearer about palliative care to help demystify it for service users and help them disseminate the findings to a broad audience; involving people as early as possible, even before the start of a project, to maximise the impact; nvolving service users at all stages of a project; using a range of methods and adopting a flexible approach to involvement to allow for changes in service users’ health and carers’ responsibilities; involving different users at different stages of the research project, again to allow for changes in people’s health and priorities.
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Categories: journal article service users and carers researchers research commissioners people at the end of life general principles of good practice guidance/guidelines
Date Entered: 2015/07/30
Date Edited: 2015/07/30