Abstract: Aim: To explore stroke survivors’ experience of involvement in research, and to find out how the consequences of a stroke affect the process.
Method: Semi-structure interviews with eleven stroke survivors.
Findings/ recommendations: The barriers to involvement were: location and transport, the ability to concentrate and deal with complex information, fatigue and communication difficulties. The factors that helped involvement were: providing transport, paying for people’s time and expenses, and employing supportive group facilitators. Professional facilitators are aware of the needs of stroke survivors and are therefore able to modify the process to help people overcome the effects of a stroke, for example allowing more time for people to speak and ensuring the venue is accessible.
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Categories: journal article service users and carers researchers research commissioners general principles of good practice people affected by stroke
Date Entered: 2015/07/30
Date Edited: 2015/07/30