Abstract: Over the past few years, patient and public involvement (PPI) in research has often been a key component of successful clinical research grant applications. However, junior researchers and many supervisors often seem rather uncomfortable when filling in this part of their funding applications, as there is still some lack of clarity on how to approach this.
Patients and members of the public can be anyone who uses or has used healthcare services. This might include parents, informal/formal carers, patient support groups, patient organisations, the general public, charities that represent specific conditions, or individuals with a special interest in the topic that is being researched.
PPI in research means getting any of these people actively involved in the research process itself, rather than just being participants or subjects of the research, with the aim that research is done with or by the public, and not to, about or for them. Thus, PPI does not refer to researchers raising awareness of research, sharing knowledge or recruiting patients as participants, it is more about engaging the members of the public and creating a dialogue with them to drive research forward and make it more patient centred. Although PPI, engagement and participation are different activities, they are often linked and complement each other.
This article aims to give young researchers a basic understanding of PPI in research, its benefits, tips about how to do it, and some “dos and don’ts”.
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Categories: health journal article
Date Entered: 2018/09/19
Date Edited: 2018/09/19