Evidence Library

Title: Patient and public involvement in primary care research - an example of ensuring its sustainability
Author: Jinks C; Carter P; Rhodes C; Taylor R; Beech R; Dziedzic K; Blackburn S; Hughes R; Ong B N
Date Published: 2016
Reference: Research Involvement and Engagement 1, 3,
Are service users or carers authors: Yes

Abstract: BACKGROUND: The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of investigation that is less developed is the sustainability and impact of PPI beyond involvement in time-limited research projects. METHODS: This paper focuses on the issues of sustainability, the importance of institutional leadership and the creation of a robust infrastructure in order to achieve long-term and wide-ranging PPI in research strategy and programmes. RESULTS: We use the case of a Primary Care Research Centre to provide a historical account of the evolution of PPI in the Centre and identified a number of key conceptual issues regarding infrastructure, resource allocation, working methods, roles and relationships. CONCLUSIONS: The paper concludes about the more general applicability of the Centre's model for the long-term sustainability of PPI in research.

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Categories: health
public health
social care
all
Identifying topics, prioritising and commissioning
Designing research
Managing research
Undertaking research
Analysing and interpreting
Writing up and disseminating
Evaluating
journal article
Recruitment
Implementation and change
lessons from direct experience of involvement
description of involvement in a research project

Date Entered: 2018/09/19

Date Edited: 2018/09/19

Additional Info: