Abstract: The authors of this article are four patients who are highly active in patient and public involvement initiatives internationally. They provide insight into why lived experience is of value to organisations and the need to recognise and support involvement in concrete ways. They explore the core principles that an organisation needs to consider and adopt when developing compensation policies. Organisations face an ongoing challenge to achieve diversity among their patient advisors so that all segments of the community they serve are represented. In particular, marginalised populations may have financial concerns that are often barriers to their full inclusion. Comprehensive compensation policies overcome these barriers. As well as exploring the principles, the article also provides practical advice on how to compensate people in a way that honors and values their contributions in quality improvement or health research.
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Categories: journal article service users and carers researchers research commissioners relevant to all service users paying service users for their involvement guidance/guidelines staff in research organisations
Date Entered: 2018/11/19
Date Edited: 2018/11/19