Abstract: There is limited reporting of patient and public involvement (PPI) within research studies and its impact, particularly in renal research. There are few reports from the perspective of lay research team members.
When designing the PIPPIN project (Patients as Partners in Promoting Shared Care), the researchers recognised that PPI had a significant role to play in its design and conduct. To bring an alternative viewpoint to the study, they recruited a first-time lay co-researcher. She was an equal partner within the research team, who carried out some or all of the research activities alongside or independent of the academic researchers.
The co-researcher was recruited from the well established Public Involvement in Research Group (PIRg) at the Centre for Research in Public Health & Community Care (CRIPACC), University of Hertfordshire.
The activities and impact of PPI is often measured or evaluated from the researcher perspective. In this paper, the co-researcher outlines, reflects on, and critically evaluates her activities at the different stages of the research cycle, and its impact on the research outcome. She describes how her role evolved, the practicalities and challenges of her involvement and reflects on that involvement and the impact of this PPI contribution. Her reflections, retrospective and based on her overall experience, were written at the project’s completion.
We hope that the co-researcher’s observations on her role, and the lessons learnt, will be useful for researchers aiming to recruit a PPI co-researcher to their team, and for other members of the public considering undertaking a similar role.
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Categories: reflecting on public involvement in research journal article
Date Entered: 2018/11/28
Date Edited: 2018/11/28