Putting it into Practice

Title: Dementia without Walls – reflections from people with dementia on how people with dementia have been involved.
Author: Marlene Aveyard, Ken Clasper, Eddy Flory, Agnes Houston, Peter Jones, Wendy Mitchell, Charlie O’Neill, Keith Oliver, Elaine Stephenson and Daphne Wallace (with support from Nada Savitch)
Date Published: 2015
Reference: York: Joseph Rowntree Foundation.
Are service users or carers authors: Yes

Abstract: People with dementia have been involved in different ways in all the work funded by JRF as part of the Dementia without Walls programme. This report brings together the thoughts of ten of the many people with dementia who were involved in this work. They explain what motivated them to get involved, what helped them and what frustrated them. They offer advice for researchers (and anyone else who would like to involve people with dementia) on how to make their involvement easier and how best to support them.

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Categories: report
general principles of good practice
lessons from direct experience of involvement
involving seldom heard groups
staff in research organisations

Date Entered: 2018/11/30

Date Edited: 2018/11/30

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