Abstract: Organisations that fund research value the opinion of patients. To decide which research should be funded they may invite patients to assist in assessing the relevance and feasibility of a research proposal from the perspective of patients. People who have experienced knowledge of living with a health condition and who assess research applications, are called patient reviewers. However, it is not always clear how they should assess a research proposal. This study aimed to develop a standard assessment form that guides patient reviewers to form an opinion about the relevance, acceptability and feasibility of a research proposal. Together with members of the Dutch Association of Health Care Funds (SGF) we developed this form by comparing 20 different patient assessment forms. In addition we sent out a questionnaire to gather the opinion and experiences of patient reviewers. Sixty-seven patient reviewers filled in the questionnaire. Their responses resulted in a form with 12 categories covering 41 items important to patients. The categories and items deal with, among others, the relevance of the study for patients and society, inclusion criteria (who are eligible for participation), safety, burden and risks for patients, privacy, communication and opportunities for public and patient engagement. A brochure for patient reviewers and a guide for employees of research funding organisations were developed to support the use of the standard assessment form. We hope that many funding organisations will use this form which makes it easier for patient reviewers to express their opinion about research proposals.
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Categories: journal article research commissioners relevant to all service users review of research proposals strategic level decision making staff in research organisations
Date Entered: 2019/01/08
Date Edited: 2019/01/08