Evidence Library

Title: “Still learning and evolving in our approaches”: patient and stakeholder engagement among Canadian community-based primary health care researchers.
Author: Claire Kendall, Michael Fitzgerald, Rachel Seoyeon Kang, Sabrina T. Wong, Alan Katz, Martin Fortin, Emilie Dionne, Kerry Kuluski, Mary Ann O’Brien, Jenny Ploeg, Lois Crowe and Clare Liddy.
Date Published: 2018
Reference: Research Involvement and Engagement 4:47
Are service users or carers authors: No/Not Known

Abstract: Increasingly, health researchers are conducting their research in partnership with non-researchers such as patients and caregivers, advocacy groups, clinicians, and policymakers. The idea behind this partnership is to make research more relevant and appropriate. However, so far there is not much evidence about how this partnership or engagement actually affects research. We conducted an online survey of 12 teams in Canada that have engaged patients and other stakeholders in community based health research, partly as a requirement to obtain funding. We found that in many cases, the teams have engaged a wide variety and large number of stakeholders, and have involved them in many different stages of their research. Teams reported that their overall experience of this approach to research has been positive, but some challenges have been encountered along the way. Some teams found that it was difficult to communicate appropriately with all the stakeholders, and to keep them informed when research was going slowly. Other teams had trouble finding government representatives to work with. Several teams noted that engagement is time-consuming, and requires a lot of effort. Nevertheless, all teams reported that they had learned from the experience, and found it valuable. As a result, Canadian health care researchers are better positioned to engage with patients and other stakeholders in the future.

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Categories: health
nature and extent of public involvement in research
journal article

Date Entered: 2019/01/08

Date Edited: 2019/01/08

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