Abstract: This paper describes a person-centred and culturally sensitive approach to working with minority ethnic communities, involving carers, people living with dementia, members of the public and carer support workers, in the Caregiving HOPE study. Patient and public involvement members were involved from the beginning and throughout the study design, conduct and dissemination. The level and nature of involvement was influenced by each individual's needs and desires, which changed over the course of the study. The involvement had a significant impact on recruitment and engagement at a national level, but was not without challenges, including the need for flexibility and additional financial and time costs.
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Categories: journal article researchers relevant to all service users general principles of good practice lessons from direct experience of involvement involving seldom heard groups staff in research organisations General guidance on involving the public in research
Date Entered: 2019/01/09
Date Edited: 2019/01/09