Research project

Title: The Aphasia Handbook.

Project timescale: From 01 June, 1997 to 01 June, 1999
(Added to website on: 21 June, 2001 - Date last updated: 20 April, 2007)

Source of funding:
Joseph Rowntree Foundation

Aims: To develop an information and resource book that provides a range of accessible information relevant to people with aphasia.

Research designs used:
Action Research
Study of views/experiences

Methods used to collect data:
Focus groups
Interviews

Research project description: Following in depth interviews with 50 people with aphasia, a range of information was gathered and then presented in an accessible format. Focus groups of people with aphasia helped with the design, content and evaluation of the book and with dissemination and on advisory panel. (N.B. Aphasia makes it difficult to read/write and communicate)

Stages at which the public were involved:
Disseminating research
Prioritising topic areas
Managing the research

Description of public involvement in research stages: Originating, monitoring, evaluating and disseminating.

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: Authentic origination of research idea showing challenges of true involvement and inclusion, not simply tokenism.

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: No Articles currently available

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Dr Susie Parr
Research Fellow
Dept of Language and Communication Science City University
London
EC1V 0HB
susiepparr@btinternet.com
0117 9211192

DISCLAIMER

Each entry has been written by the individual project and although care has been taken in compiling, checking and updating the information on this site INVOLVE and the National Institute for Health Research (NIHR) cannot guarantee its correctness and completeness. We do not accept responsibility for any loss, damage or expense resulting from the use of this information.