Research project

Title: Communication and Informal Helping in Early Stage Dementia

Project timescale: From 01 January, 1997
(Added to website on: 19 August, 2002 - Date last updated: 11 February, 2013)

Source of funding:
Aspects undertaken by Jenny Griggs, Lucie Robinson and Lis Mason as part of their doctoral training in clinical psychology.

Aims: 1. Explore how couples, where one partner is developing dementia, communicate with each other about this. 2. To explore the impact on couple relationships of one partner receiving a dementia diagnosis. 3. To investigate the processes of support and informal helping with early-stage dementia support groups.

Research designs used:
Action Research
Study of views/experiences
Other:

Methods used to collect data:
Interviews
Validated instruments eg Outcome measures
Questionnaire survey
Observation
Other (please specify):

Research project description: Methods used are interviews (individually and together), facilitated recall, tape-recording of conversations, and observation.

Stages at which the public were involved:
Prioritising topic areas
Planning the research
Other:

Description of public involvement in research stages:

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: - Identifying and prioritising important issues. - Ensuring acceptability. - Providing feedback on written account

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: Clare, L. (In Press) Managing threats to self: awareness in early-stage Alzheimer's disease. Social Science and Medicine Clare, L (In Press) Developing awareness in early-stage dementia. Dementia. Future Journal articles planned.

Links to Reports:

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Dr Linda Clare
Lecturer in Psychology
Clinical Health PsychologyUniversity College London
Gower Street
London
WC1E 6BT
l.clare@ucl.ac.uk
020 7679 1844

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