Research project
Title: RAPPORT: Research with Patient and Public Involvement: a Realist Evaluation
Project timescale: From 01 September, 2011 to 28 February, 2014
(Added to website on: 10 December, 2012 - Date last updated: 14 January, 2013)
Source of funding:
National Institute for Health Research Health Services and Delivery Research Programme and INVOLVE
Aims: This project seeks to evaluate how different approaches to public involvement in research (with different populations) influences the identification of priorities, research conception, design, process, findings and knowledge transfer.
Research designs used:
Case Study
Study of views/experiences
Other:
Methods used to collect data:
Documentary analysis
Interviews
Questionnaire survey
Other (please specify):
Research project description: Stage 1: A national UK scoping has been undertaken of studies within the six exemplar research topics (cystic fibrosis, diabetes, arthritis, dementia, learning disability, public health) currently funded or completed within the last two years. Stage 2: Online survey has been undertaken of chief investigators leading studies in the six topic areas in four regions of England (London, East of England, NE and SW). Stage 3: Case studies: 23 research studies identified from the survey followed for over 18 months.
Stages at which the public were involved:
Planning the research
Speaking about the research eg
workshops, presentations
Managing the research
Seeking funding / applying for funding
Designing the research instruments
(eg questionnaires, patient information sheets)
Assisting in finding and designing appropriate
ways of approaching participants
Undertaking the research
Final Research Report
Analysing the research
Contributing / commenting on final report
Writing about the research eg
publications, newsletters
Writing or co-writing final report
Disseminating research
Other:
Description of public involvement in research stages: Design of research proposal (PIRG). Design of data collection tools, carrying out telephone interviews, qualitative data analysis (co-researchers). Advisory group has six lay members out of 22 (PIR is a standing agenda item). The research team meet with the two reference groups (Learning Disability and CF) to discuss findings.
Training and support provided for either members of the public or researchers involved in the project: PPIRes (NHS Norfolk) and PIRG (University of Hertfordshire) have had previous research training, each group has a dedicated local co-ordinator who offers support to the group. In addition, they have an identified researcher for support on this project (for example travel an so on). Specific to this project the PPI (patient and public involvement) co-researchers have had interview training and a number of meetings with researchers concerning data analysis.
Examples of ways the public have made a difference to the research project: Design of proposal; Advisory Group - keep focus on PPI; change language/layout-data collection tools, interview schedule, academic papers, conference abstracts; modify interview schedule - introduction and content; PPI co-researchers have carried out interviews with PPI interviewees (shared experience (illness, parent)); PPI co-researchers present papers at conferences (INVOLVE, invoNET).
Evaluating the impact of public involvement in the research: Researchers/PPI individuals asked to collect reflective thoughts throughout the project (written, recorded) - PPI and impact. Informal meetings arranged to record thoughts. Paper copies of PPI changes to documents collated.
Details of publications or reports resulting from the research: No articles/papers yet
Was/is your project user controlled: No
For further information on the project, please contact:
Dr Elspeth Mathie
Research Fellow
University of Hertfordshire
CRIPACC, School of Health and Social Work
College Lane
Hatfield
Hertfordshire
Al10 9AB
United Kingdom
e.j.mathie@herts.ac.uk
01707 281090
Website: www.netscc.ac.uk/hsdr/projdetails.php?ref=10-2001-36
Dr Patricia Wilson
University of Hertfordshire
p.m.wilson@herts.ac.uk
01707 286391
Website: www.netscc.ac.uk/hsdr/projdetails.php?ref=10-2001-36
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