Research project
Title: Scoping study into lay involvement in research.
Project timescale: From 01 September, 2000 to 06 January, 2001
(Added to website on: 18 May, 2001 - Date last updated: 20 April, 2007)
Source of funding:
Consumers in NHS Research/Health Technology Assessment
Aims: To provide a report containing guidelines and recommendations for lay involvement in health-related research ( taken from a scoping study of a number of fields, including social care, community and overseas, development and public health)
Research designs used:
Other: Not appplicable
Methods used to collect data:
Interviews
Questionnaire survey
Other (please specify): Literature searches, workshops, informal meetings.
Research project description: This is not a systematic review but a scoping study so a broad range of examples of lay involvement in research will be gathered through literature searches, sending questionnaires out to selected groups and contacting individuals known to be involved in this area of research in a number of different fields. 8 research projects will be examined in detail, including a face-to-face interview with the researcher and any other important stakeholders. The end product will be as in 'Aims of the Project'.
Stages at which the public were involved:
Prioritising topic areas
Managing the research
Description of public involvement in research stages: Involvement as members of project steering group. Workshops to be held to discover key issues of involvement in research from lay perspective. Asked to read first draft of report to determine if user-friendly, accessible, easy to understand e.g. provide constructive criticism.
Training and support provided for either members of the public or researchers involved in the project:
Examples of ways the public have made a difference to the research project: We have already been guided as to the key questions that need to be asked when considering involving lay people in research and also when looking at the quality of a piece of research involving lay people. This has avoided domination of professional outlooks.
Evaluating the impact of public involvement in the research:
Details of publications or reports resulting from the research: The report will be published in September/October 2001 and copies will be available for professionals and consumers. The report will be posted on the Consumers in NHS Research website and the Folk.us website. Http://latis.ex.ac.uk/folk.us
Was/is your project user controlled: Not Known
For further information on the project, please contact:
Ms Annie Mitchell
Project Lead
Folk.Us
School of Psychology, University of Exeter
Washington Singer Building
Perry Road
Exeter
EX4 4QG
a. mitchell@exeter.ac.uk
01392 264621
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