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INVOLVE 2018-2019
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INVOLVE Executive Group
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Charity Involvement Directory
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Good practice for payment and recognition – things to consider
Benefits Advice Service for involvement for members of the public
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Benefits Advice Service for involvement for NIHR organisations
ALPHA – a young people’s research advisory group
BRIGHTLIGHT study
- ‘If you build it they will come’
Involving children and young people in research: not the usual suspects
Involving young people in the design and delivery of health research
Involving young people through film and animation
Lessons from involving children and young people in service improvement
NIHR/Wellcome Trust Clinical Research Facility Cambridge Children’s Non-Executive Research Board
YPAG: The Young Persons’ Advisory Group
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ALPHA – a young people’s research advisory group
Involving young people in the design and delivery of health research
Welcome to INVOLVE
YPAG: The Young Persons’ Advisory Group
Putting the horse before the cart: an agenda for public engagement
‘If you build it they will come’
Using social media for public involvement in research
INVOLVE conference 2014
The NIHR School for Social Care Research and user involvement
Lessons from involving children and young people in service improvement
BRIGHTLIGHT study
Our work
Involving children and young people in research: not the usual suspects
Review tunes into future priorities
NIHR/Wellcome Trust Clinical Research Facility Cambridge Children’s Non-Executive Research Board
Involving ‘seldom heard’ groups in HIV research
Involving young people through film and animation
Frequently asked questions
This is my story
Learning to listen at Parkinson’s UK
Welcome to the Autumn 2014 Newsletter
Welcome to the Autumn 2014 Newsletter
What I wish I’d known before going into public involvement research
The NIHR-wide learning and development group – a member’s view
Planting the public involvement seed early in researchers’ careers
Building Research Partnerships
Working together to develop public involvement training
Learning and development for public involvement: a personal reflection
The National Institute for Health Research (NIHR) strategic review of public involvement in research
Plain English summaries in National Institute for Health Research (NIHR) funded research
Parents advising researchers: Experiences from the ‘Beating Anxiety Together’ study
The changing face of public involvement in research teams
Inspiring involvement in research
Welcome to the Spring 2014 Newsletter
Around the table: Maryrose Tarpey
Around the table: Maryrose Tarpey
Around the table: Patricia Wilson
Around the table: Kati Turner
Around the table: Sophie Staniszewska
Around the table: Diana Rose
Around the table: Andrew Gibson
Around the table: Jonathan Boote
Criteria for inclusion
Around the table: Rosemary Barber
Criteria for inclusion
You’ve done the research – now what?
Merging worlds – the importance of support roles for patient and public involvement (PPI)
SCIE: Talking and walking co-production
Optimising adult mental health service configurations across health and social care
Webinars: an insider’s view
Exploring the impact of public involvement in research: examples
Public involvement/ participation/ engagement in research
The lived experience of co-producing research
Launch of the Public Involvement Impact Assessment Framework
Clinical Research Ambassador Group
The Tourettes Listening Project
EQUIP: Building the skills of service users and carers to become involved in research
STOP Diabetes study
PPI in research – passing the town hall meeting test
Budgeting for involvement
Beyond the usual suspects, towards inclusive user involvement
Involving patients and the public in the work of the Medical Research Council Clinical Trials Unit
Public involvement in clinical trials
Public involvement and the REF ‘impact’ agenda: squaring the circle?
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What’s the evidence for? A critical reflection on the evidence base for public involvement in research
Patient involvement in setting research priorities in the Netherlands
University of Western Australia Consumer and Community Participation Program
The Center for Evidence-based Policy at Oregon Health & Science University: Working to engage US patients and stakeholders in health research
Patient and health consumer involvement at ZonMw
- The Center for Evidence-based Policy at Oregon Health & Science University: Working to engage US patients and stakeholders in health research
BPSU PPI Guidance for Researchers
The road towards PPI in research in Denmark
Newsletter Spring 2013 invoDIRECT
Welcome …..
All Trials Registered, All Results Reported
Mentoring service user researchers
Involving women with gestational diabetes
Putting research on everyone’s agenda
INVOLVE 2012 Conference – Facts and figures
Putting research on everyone's agenda
The PEOPPLE project
Supporting PPI in paediatric research
Supplements to resource for researchers
Resource for researchers case studies
Search help: Evidence library and Putting it into practice
- invoNET 2012
Search help: Research project database
Welcome to the INVOLVE Autumn 2012 Newsletter
Becoming ‘them’ and remaining ‘us’ … or the road to ruin?
Community Researchers
Is there another ‘P’ to consider in relation to longitudinal birth cohort studies?
Involving people with communication disability in participatory research: the Friendship and Aphasia project
Resource for researchers templates
Developing training and support for public involvement in research
The Past Caring Project: a carer-led narrative research project about carer bereavement
International Collaboration on Participatory Health Research
The VIPER Project: involving young disabled people in research
Putting our strategy into practice
About this resource
Acknowledgements and contributors
About this resource
Developing training and support case studies
Training case study one
Issues to think about before you start – support
Training case study two
Training case study three
Training case study four
Training case study five
Training case study six
Training case study seven
Training case study eight
Training case study nine
Training case study ten
Training case study 11
Training case study 12
Training case study 13
Training case study 14
Training case study 15
Training case study 16
Training case study 17
Support for peer interviewers
Issues to think about before you start – training
Training for peer interviewers
Issues to think about before you start – training
What is a peer interviewer?
Issues to think about before you start – support
Support for public reviewers
Issues to think about before you start – training
Training for public reviewers
What is a public reviewer?
Training for steering group members
Training for steering group members
Issues to think about before you start – training
Support for steering group members
Issues to think about before you start – support
What is a steering group?
Support for advisory group members
Support for advisory group members
Issues to think about before you start – support
Issues to think about before you start – training
What is a project advisory group?
Issues to think about before you start – support
Training for advisory group members
Support for research panel members
Issues to think about before you start – training
Training for research panel members
What is a research panel?
Budgeting for support
Issues to think about before you start – support
Different approaches to providing support
Different types of support
What are support needs?
Budgeting for training events or courses
Running training events or courses
Issues to think about before you start – training
Different methods of training
What should training for researchers cover?
What should training for members of the public cover?
Planning training – who benefits from training?
Involving patients and the public in talking about medical research
Consumers take the initiative in patient and public involvement (PPI) training
Top ten research priorities relating after stroke
The patient inside and ‘outside’ the committee
The patient inside and 'outside' the committee
Bringing our strategy to life
Case study seven
noticeboard
Improving musculoskeletal research in North Bristol through public participation
Making sense of study steering groups: the Approach study
Patient involvement in combating sight problems
Making sense of study steering groups: the Approach study
A patient safety study: reflections
Bridging the gap
Interesting articles and publications
INVOLVE Coordinating Centre news
Interesting articles and publications
Not if, but when
INVOLVE Coordinating Centre news
Briefing notes: References
Case study three
Case study four
Briefing note eight: Getting started
- Template one: Terms of reference
Briefing note seven: User controlled research
Briefing note seven: Collaboration
Briefing note seven: Consultation
Briefing note five: Document and record public involvement
Briefing note five: Clarify organisational responsibilities
Briefing note five: Offer training and support
Briefing note five: Resource public involvement in research
Briefing note five: Be accessible
Briefing note five: Be clear with the people you want to involve
- Template two: Role description
Briefing notes authors
Briefing notes acknowledgements
Briefing note five: Involve people as early as possible
Test case study2
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