Multiple Sclerosis Society UK

Description

The Multiple Sclerosis (MS) Society is the UK’s leading MS charity. Since 1953, we’ve been providing information and support, funding research and fighting for change. We fund research, give grants, campaign, provide information and support, invest in MS specialists and lend a listening ear to those who need it.

The MS Society is the largest source of MS research in the UK. Currently we are funding 80 world-class research projects worth over £20 million. With more MS research being carried out than ever before the MS Society are committed to funding research into a wide range of topics including stem cells, immunology, symptom relief and MS services.

Public involvement in research

The MS Society aims to ensure that people with MS are involved in every aspect of our work. In the research department this is vital as the involvement of people affected by MS assists us in ensuring the research we fund reflects the priorities of these people, and that researchers take into account the needs of people affected by MS in their projects.

The MS Society has its own ‘Research Network’ which is currently made up of around 350 people who are affected by MS. The Research Network members are involved in research in a number of ways including; reviewing research applications; reviewing materials such as leaflets, posters, webpages, and questionnaires prior to their use in research; helping us set our research priorities; sitting on grant selection panels; and sitting on steering groups to help throughout the research process

We feel that members of our Research Network have a great deal to offer at all stages of research. We have a dedicated member of staff, our Public Involvement Officer, whose role is to support involvement in research both for researchers and for the Research Network.

http://www.mssociety.org.uk/ms-research/get-involved-in-research/research-network