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User controlled research: building together on what we know and exploring next steps
Late in 2005, INVOLVE published the first national review of User Controlled Research (undertaken by the presenters). Produced from a service user perspective, it offered information about the definition, strengths and weaknesses of user controlled research. As well as making clearer what it is and what it can offer, however, it also highlighted concerns about …
Improving clinical research across the UK: who, why, how?
The UK Clinical Research Collaboration (UKCRC) is a partnership of organisations working to revitalise the environment for clinical research in the UK. Through a coordinated programme of work the UKCRC Partners are working to harness and build on the huge research potential of the NHS. The ultimate aim is to benefit patients and the public …
Involving clients and their carers as equal partners on a project using electronic communication
Sue Ashby works as a member of a research team organising meetings within a project which aims to improve care for older people. The research team are interested in a type of care known as Intermediate Care. This involves looking after a person in their own home or other suitable place providing care which would …
Carer Survey for Cardiac Patients
The Carer Questionnaire Project aims to identify the timeliness, quality and different types of information carers receive regarding their relatives’ cardiac condition. It seeks to discover the perceptions and experience carers have had regarding the following: Being present at the patients’ diagnosis and understanding the impact it had on their future lives. Awareness of the …
Involving visually impaired people in research: a case study
This poster outlines how visually impaired people are being involved in an ongoing research study by a student (Catherine Beverley) at the University of Sheffield. The research concerns the health and social care information needs of people with a visual impairment. At the start of the project, Catherine attended three local visual impairment support groups …
Young People’s Reference Group on Public Health: methods and achievements
This paper will report on the development and progress of a Young People’s Reference Group on Public Health which has been established through the collaboration of three organisations. The group is organised by the National Children’s Bureau on behalf of the Public Health Research Consortium (PHRC), with funding from INVOLVE. The PHRC is funded by …
Our lives your learning
Involving people who use services and carers in social work education at the University of Bedfordshire. What is the workshop about? From September 2004 the training for social workers changed and the government said that people who use services and carers must be involved in the training. The University of Bedfordshire, formerly the University of …
The Research Assessment Exercise (RAE) and public involvement in research: can the tensions be reconciled?
The Research Assessment Exercise (RAE) determines funding allocation for university research – a major location of research activity. There are concerns that the RAE’s orientation is not consistent with increasing interest in public, patient and service user involvement in research/evaluation. Different RAE panels and subpanels approach this issue in different ways. Clearly it is important …