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Making NICE Research Nicer: Involving patients, carers and the public in the National Institute for Clinical Excellence (NICE) research agenda
This workshop will Describe the work of NICE and existing opportunities for patient, carer and public (user) involvement Describe the new NICE R&D programme Involve workshop participants in translating the principles of user involvement into practice to identify roles for patients, carers and the public in the new NICE R&D programme Discuss ways of disseminating …
It’s our project! People with learning difficulties managing and doing research
We are a group of people with learning difficulties called the Learning Difficulties Research Team. The Department of Health asked us to find out all about good ways to involve people with learning difficulties in research. We are doing this by looking at what’s happened in 12 research projects funded by the government through the …
Best practice in involving service users and carers in research: Confronting the issues and doing it for real
We aim to tease out the discrepancies between theory and practice when involving service users and carers in research and to make participants discuss the issues behind the reality of “meaningful involvement”. In order to achieve this, we will use our own involvement in collaboration with the local university. We are very aware that we …
A survivor – led evaluation of a survivor-led service
This workshop will present some information about the evaluation of the Leeds Survivor Led Crisis Service carried out by the team, under the following headings: Training: a developmental approach was taken to training to take into account the previous experience and skills of all team members; Mutual support and teamwork: we shall explore the issues …
Knowing how: a guide to getting involved in research
September 2001. A guide for members of the public by Folk.us