Search Results for trial steering committee
Evaluating the impact of patient, carer and public involvement in the NIHR Stroke Research Network
Abstract: We will present our approach to the evaluation of patient, carer and public involvement (PCPI) within the National Institute for Health Research (NIHR) Stroke Research Network (SRN). Summary: The NIHR SRN advocates PCPI at all stages of research. It is important to evaluate the impact of PCPI upon research processes and outcomes and understand what …
Consumers take the initiative in patient and public involvement (PPI) training
By Peter Rainey and Carolyn Morris In this article we report on how we, as two consumers, conceived, designed and delivered a training event aimed at improving the quality and effectiveness of patient and public involvement (PPI) by research teams. COMPASS was one of two Supportive and Palliative Care Research Collaboratives funded by the National …
Bringing quality to life: The patient experience
Abstract: Background Oncology and Haematology Clinical Trials (OHCT) is the connection between trial sponsors and patients. Our first priority is to our patients. Why then do we always listen to what the sponsors want from us and not what our patients want from us? Objectives Introduce research team, clinicians, patients, carers and family to designing …
Writing patient information sheets
Abstract: The Patient and Public Involvement (PPI) group within the Medical Research Council (MRC) Clinical Trials Unit at University College London (UCL) developed a patient information sheet template in 2009, to be used by trial teams within the unit. Two patient representatives from the National Cancer Research Institute Consumer Liaison Group were involved in the …
Parents advising researchers: Experiences from the ‘Beating Anxiety Together’ study
By Deborah Garland, Dave Linsley, Ann Le Couteur and Helen McConachie There is increasing recognition that users of services have a great deal to offer to research that is far more than simply taking part in a study. This article describes our experience as parents advising a research study of group therapy for young people …
REFOCUSing on lived-experience involvement as part of a recovery orientated training programme intervention in two Mental Health Trusts: A paper to explore the successes and challenges of livedexperience speakers in an RCT setting
Abstract: Addressed themes: How people are involved in research Learning from past experiences Learning and support How and what is provided Sharing resources, mentoring, and peer support The Refocus Randomised Controlled Trial (RCT) aims to deliver and evaluate personal recovery focused training across community mental health teams in the SLaM (South London and Maudsley) and …
The Centre of Evidence Based Dermatology (CEBD) Patient Panel: Wider benefits for patient health?
Abstract: The CEBD Patient Panel was established in 2009 to create a more effective research environment and give support to those involved in CEBD research. The panel comprises 20 active patients and carers affected by a variety of skin disorders. Four panel training events have been held to date with an average of 12 members …
Developing PPI in liver disease in a NHS Foundation Trust in collaboration with the Biomedical Research Unit (BRU)
Abstract: Liver disease is now the fifth commonest cause of death in the United Kingdom (BASL & BSG 2009) and it is associated with significant morbidity. It is important that research incorporates education, raising awareness, prevention, detection, intervention and management into its strategic plans. This can be facilitated by incorporating PPI to optimise delivery in …