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Carer Survey for Cardiac Patients
The Carer Questionnaire Project aims to identify the timeliness, quality and different types of information carers receive regarding their relatives’ cardiac condition. It seeks to discover the perceptions and experience carers have had regarding the following: Being present at the patients’ diagnosis and understanding the impact it had on their future lives. Awareness of the …
Involving visually impaired people in research: a case study
This poster outlines how visually impaired people are being involved in an ongoing research study by a student (Catherine Beverley) at the University of Sheffield. The research concerns the health and social care information needs of people with a visual impairment. At the start of the project, Catherine attended three local visual impairment support groups …
Young People’s Reference Group on Public Health: methods and achievements
This paper will report on the development and progress of a Young People’s Reference Group on Public Health which has been established through the collaboration of three organisations. The group is organised by the National Children’s Bureau on behalf of the Public Health Research Consortium (PHRC), with funding from INVOLVE. The PHRC is funded by …
Our lives your learning
Involving people who use services and carers in social work education at the University of Bedfordshire. What is the workshop about? From September 2004 the training for social workers changed and the government said that people who use services and carers must be involved in the training. The University of Bedfordshire, formerly the University of …
The Research Assessment Exercise (RAE) and public involvement in research: can the tensions be reconciled?
The Research Assessment Exercise (RAE) determines funding allocation for university research – a major location of research activity. There are concerns that the RAE’s orientation is not consistent with increasing interest in public, patient and service user involvement in research/evaluation. Different RAE panels and subpanels approach this issue in different ways. Clearly it is important …
Getting started with involving the public in public health research
April 2004. An information sheet for researchers.
Who says service users want this research and what will they get out of it?
This workshop will provide short input for group discussion. It will consider how nationally service users’ views can lead to the identification of a research topic and become the basis of a research project, exploring the complex issues that are involved in bringing about change nationally and locally, based on such research findings. The focus …
A report on how the Medical Research Council Consumer Liaison Group has influenced MRC research in the early stages
The MRC is a national organisation funded by the taxpayer. It promotes research in all areas of medical and related science. The MRC established the CLG in 2000 to: (1) advise the MRC Council on the public’s perspectives on research, policy and strategy, (2) advise on how to involve the public in particular activities, and …