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Co-producing not just involving: The lessons learned from an emancipatory action research project into mental health recovery
Abstract: In the past ten years new policy drivers have emerged which extol the virtues of wider public and patient involvement in health research. Itās been suggested that it has the potential to enhance the quality of research whilst also reducing waste of both time and money. This paper draws on the lessons learned from …
Getting the ducks in line: Public involvement in research and organisational development
Abstract: The Quality and Outcomes of person-centred care Research Unit (QORU) is a Policy Research Unit funded by the Department of Health formally launched in January 2011. QORU aims to improve the health and social care of people with long-term conditions through research. This paper describes the journey so far in ensuring that public involvement …
Memories on film: Using creative methods with seldom heard groups
Abstract: This presentation revolves around a screening of a short film produced during the course of research involving working alongside people with dementia to co-produce films about their lives and experiences. There will be discussion in the presentation focused on the use of creative methods with groups that are often less heard, with a particular …
Taking the pulse: An interactive workshop using the example of the National Cancer Patient Experience Survey (NCPES) to encourage fairer access to research for all patients
Abstract: Ā Our consumer-led project introduced questions about research to the annual surveysĀ of 120,000 recently diagnosed cancer patients in England. We will outline some of the findings from that work 33% report having had a discussion about taking part in research 95%of those asked were glad to have been asked 57% of those not asked would …
Eggs and chickens, what comes first, involvement or engagement?
Abstract: Ā Public engagement with science and research has traditionally consisted, for theĀ most part, of telling people what they ought to understand (particularly about theĀ importance of research). Because of this it has tended to follow research rather thanĀ precede it. It has also been seen as something very different from involvement, theĀ public in engagement are passive receivers …
EUPATI ā European Patientsā Academy on Therapeutic Innovation: A novel pan-European initiative that is delivering a paradigm shift in empowering patients and the public to understand the medicines development process and how to contribute to it
Abstract: We will provide an overview of EUPATI – European Patientsā Academy on Therapeutic Innovation – whose purpose is to develop a paradigm shift in empowering patients/public to understand the medicines development process and how to contribute to it through learning and development. Specifically to: develop and disseminate accessible, well-structured, user-friendly information and education on …
Using short films to engage people in healthcare research and improvement
Abstract: The National Institute for Health Research (NIHR) Collaboration for Leadership and Applied Health Research and Care (CLAHRC) for Northwest London facilitates the involvement of patients in evidence based quality improvement. A panel of ten patient and community representatives watched fifteen short films produced by healthcare research and improvement teams. We asked the panel six …