Capacity building in a mental health service user and carer research group: Experiences at Rotherham Doncaster and South Humber Mental Health NHS Foundation Trust (RDASH)
2008 Conference
The poster will seek to:
- Provide a brief history of the genesis and development of a mental health service
user and carer research group at Rotherham Doncaster and South Humber
Mental Health NHS Foundation Trust; - Describe the group’s experiences of engaging in consultation exercises about
national research priorities, reviewing research proposals, building research
capacity and developing research proposals; - Illustrate the support required to sustain the group in its work, and the challenges
associated with sustainability; - Provide some storying of the personal experiences of group members in order to
highlight (i) the value of service user and carer groups as experts by experience
in addressing the personalisation agenda in research, and (ii) moral dilemmas in
research; - Raise some wider issues for debate about the funding of user and carer research
groups, pre-protocol work, engagement with ‘seldom heard’ groups and the limits
of participatory strategies.
Authors
Grant ~ Gordon
Director, Centre for Health and Social Care Research, Sheffield Hallam University.lnbrGordon Grant is the director of the Centre for Health and Social Care Research at Sheffield Hallam University. User inclusion is one of his mainstream interests.
View all articles by this authorMorton ~ Paul
Paul Morton is a member of the service user and carer research group. Paul has a long interest in research, which stemmed from his career in industry. He is a governor of the Trust and an inaugural member of the research group.
View all articles by this authorOldknow ~ Helen
Clinical Effectiveness Lead, Rotherham Doncaster and South Humber Mental Health NHS Foundation Trust. Helen Oldknow is a qualified learning Disabilities and Mental Health Nurse, she has worked in research governance and support for over two years. She is a member of the service user and carer research group.
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