DOCTER (Diagnosis of Cancer, the Economic Reality): Issues in user-led research
2008 Conference
The poster reports on the progress of the DOCTER project. DOCTER stands for Diagnosis of Cancer: The Economic Reality. This project aims to study the ‘true’ cost of a cancer illness to the patient, their family, society and the NHS. The project has now been funded by the Trent RDSU in support of consumer led research.
The project is led by David Ardron, with input from the Consumer Research Panel.
The poster presentation will discuss the motivation for the DOCTER project, how the project was instigated, the problems that we have encountered and how we have tried to overcome them.
The poster presentation will also provide an introduction to the North Trent Consumer Research Panel and the diverse projects that they have been involved in.
It is hoped that the presentation will lead to a discussion about how to get consumer led research off the ground and the process and practicalities of consumer led research.
It is also hoped that by showcasing some of the other work that goes on in the North Trent Consumer Research Panel the audience will learn more about the valuable contribution that local research panels have to make.
Authors
Ardron ~ David
David Ardron, Lay PPI Facilitator, South Yorkshire CLRN. David has worked in patient-public involvement in cancer research for eight years, and more recently in other health areas. His parents are both cancer patients. He is currently working as a PPI facilitator for the South Yorkshire CLRN. He has worked on many local and national research groups and committees.
View all articles by this authorThompson ~ Jill
Jill Thompson has a background in social policy and sociology and has a national reputation in the area of patient and public involvement (PPI) research and has worked in various PPI settings over the last 5 years. She is currently a lecturer in nursing and midwifery at University of Sheffield.
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