Establishing a dedicated Research PPI Group in the NIHR CLAHRC LNR Rehabilitation Theme
2012 Conference
Abstract: The NIHR CLAHRC for Leicestershire, Northamptonshire & Rutland Rehabilitation Theme is conducting a novel and ambitious programme of applied research in the field of rehabilitation for patients with chronic cardiopulmonary diseases. The benefits of pulmonary and cardiac rehabilitation are well established and embedded in national and international guidelines. Our research philosophy has been to design and test tailored rehabilitation interventions. We have embraced the need to integrate PPI in all our research and implementation programmes.
A presentation/poster session will identify the processes involved in establishing a dedicated research PPI group. Details of developing the group will be discussed along with how members defined and agreed their aims and objectives. Barriers and obstacles will be explored. Emerging member roles and responsibilities will be addressed.
An overview of the group’s successes and future aspirations will be presented bymembers themselves. The development of the group’s web-based portal for within-group communication will be described.
Our aim is to reflect on the group’s journey enabling other research groups to learn from our experiences. A secondary aim is to inspire others to become involved in PPI activities.
Authors
Alton ~ Madeline
Madeline Alton is a deputy lead member of the Cardio-Pulmonary Rehabilitation PPI Group, UHL NHS Trust. Maddy provides representation in two of the group’s studies and in the development of the Care Bundle. In addition to this Maddy provides a voluntary buggy service for patients with poor mobility at UHL.
View all articles by this authorHarvey-Dunstan ~ Theresa
Theresa Harvey-Dunstan is a Senior Researcher in the NIHR CLAHRC LNR Rehabilitation Theme and is the nominated PPI Champion for the research group. Theresa has a background in acute and chronic respiratory care with a particular interest in patients with COPD. She leads the development of the Themes PPI group.
View all articles by this authorSewell ~ Louise
Dr Louise Sewell is the Clinical Lead for the Pulmonary Rehabilitation Service at UHL. She is a registered occupational therapist and has worked exclusively in pulmonary rehabilitation for many years. As the clinical lead Louise has been key in establishing the department’s PPI group and in integrating its function into the clinical setting.
View all articles by this authorVose ~ Mick
Mick Vose is a deputy lead member of the Cardio-Pulmonary Rehabilitation PPI Group, UHL NHS Trust. Mick provides representation in four of the Rehabilitation Theme studies and in the development of the Care Bundle. Mick also gives his time as a volunteer in the pulmonary rehabilitation classes.
View all articles by this author« Go back
