Involving people with aphasia in developing an assessment
2006 Conference
Kate Swinburn works with people who have aphasia, a communication difficulty. She wanted to develop an assessment – a way of finding out about life with aphasia.
The assessment is called The Communication Disability Profile. It asks what people with aphasia find easy and difficult, and what gets in their way. It asks about their hopes for the future. The person with aphasia can rate how much aphasia gets in the way of everyday life for them.
People with aphasia don’t usually get the chance to take part in research. But they were involved in this project and they had a big impact.
Kate will talk about the different ways in which people with aphasia were involved in this project.
She will show some examples from the Communication Disability Profile. She will discuss how the project changed thanks to people with aphasia.
Authors
Swinurn ~ Kate
Product Developer (Training Lead), Connect - The Communication Disability Network. Kate works for a voluntary sector organisation that develops, delivers and disseminates innovative services and resources for people who live with language disability following stroke (aphasia). Her professional background is in speech and language therapy. She has worked in clinical practice for fifteen years in the acute, rehab and community NHS settings. She has experience of being involved in research projects yielding two assessment tools - both for use with people who have aphasia. Her PhD thesis related to the complexities, practicalities and ethics of involving people with aphasia in exploring and measuring the impact of aphasia. She currently designs, coordinates and delivers inter-disciplinary training at Connect.
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