Patient and Public Involvement in Healthcare Research

2006 Conference

I am doing research about young adults who have had a stroke. My supervisors designed the study. This meant that members of the public were not involved in the study from the start. But they are involved now.

The Advisory Group talks about what people said in the research interviews. This helps me to understand what is important to young adults who have had a stroke.

The Group can help to tell other people about the research. They can tell others about what it is like to take part in a research Advisory Group.

Our presentation will cover:

1. Background information about the study

2. Why have an Advisory Group?

3. How do you recruit people?

4. How do you involve people with communication problems?

5. What will the group do?

6. What is it like being in the group?

What we hope people will learn:

Some ideas for recruiting people
Good ways to involve members of the public in research
Good things about being in an Advisory Group

Issues for discussion:

Involving someone with aphasia
Involving someone who had a stroke recently
Involving someone who had a stroke a long time ago

Authors

Lawrence ~ Maggie

PhD Research Student, Nursing, Midwifery and Allied Health Professions Research Unit, Glasgow Caledonian University. Maggie Lawrence worked for seven years as a Senior Nurse in the field of neurological rehabilitation before moving into the field of healthcare research. She has worked on a variety of projects which include an investigation of the stressors faced by the carers of adults post-stroke, and of the impact of Parkinson’s disease in younger adults on employment and related issues. Currently she is in the third year of her Chief Scientist Office-sponsored PhD studentship which aims to identify patient-centred outcomes for young adults post-stroke and their families. Through this study she has gained experience of setting up advisory groups and involving service users in the research process.

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