2014 Conference

Abstract: The Collaboration for Leadership in Applied Health Research and Care (CLAHRC) East Midlands has established an East Midlands Centre for Black and Minority Ethnic Health and a Patient and Public Partners’ Council. These initiatives complement each other by increasing awareness of research and facilitating wider participation and involvement. We will outline the principles and values we hold showing our progress to date, barriers encountered, facilitators adopted and future plans.

The Centre works with communities to help reduce health inequalities, facilitate the dissemination of health information, provide the tools for the communities to raise their own priorities and empower themselves to improve health literacy and access to interventions. We will show how the centre is building trust between minority communities and the research world, the roles of community members within the review panel and governance structure of the centre and the diversity of engagement we have achieved.

One of the members of the Partners’ Council will share their perspective and describe how the council works. The council has a fundamental role in observing and supporting funded projects acting both as a resource for research teams and as a monitoring body ensuring that the projects are involving all appropriate stakeholders throughout the process to potentially improve patient outcomes.

Increasing involvement to individuals who are not usually heard is fundamental to ensuring that interventions, programmes and services work inclusively. Therefore these initiatives are supporting partnership development with marginalised groups and individuals as the foundations to reduce health inequalities and ultimately achieve equity.

Authors

Cameron ~ Trudi

Patient and Public Partners' Council Member, National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care East Midlands. Trudi Cameron MSc is retired East Midlands Cancer Network Director Quality, Improvement and Nursing. She is experienced in patient focused and led improvement, quality assurance and research. Her current portfolio includes voluntary sector bid development, patient led improvements in children’s cancer services, Age UK Expert by Experience, research into police mental health, Healthwatch Prioritisation Panel member.

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Patel ~ Naina

Naina Patel is a Research Associate at the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care East Midlands, University of Leicester. She has extensive experience of community development and policy work. Her unique skills and expertise are currently being used to develop engagement strategies in research, partnering with South Asian voluntary and community sector groups. She has a BA (Hons) in Sociology and Social Anthropology, an MBA.

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Wray ~ Paula

Paula Wray is the Public Involvement Programme Lead for the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) East Midlands and has a strategic role ensuring that public involvement and stakeholder engagement is central to the CLAHRC and its projects. She is setting up a Patient and Public Partners’ Council and the East Midlands (EM) Centre for Ethnic Health to facilitate diverse engagement and more ground up direction for the organisation.

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