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The launch of the NIHR Clinical Research Network: West Midlands ‘Patient, Carer and Public Involvement and Engagement’ (PCPIE) strategy

2014 Conference

Abstract: The National Institute for Health Research (NIHR) Clinical Research Network: West Midlands ‘Patient, Carer and Public Involvement and Engagement’ (PCPIE) in research working group launched their PCPIE strategy on 6 March 2014. Development of this strategy required input from key regional patient and public involvement (PPI) stakeholders. Lay people, patients, carers, academic professionals and health staff were invited from a range of specialities including medicines for children, stroke and mental health. This poster presents the results of their discussion and input into the PCPIE strategy.

64 delegates took part in four workshops, based around a ‘World Café’ format. Four table cloths, one for each workshop, were placed on the nine tables and delegates were asked to write their thoughts, examples and questions onto the cloth as each discussion progressed. The workshop topics were:

  1. Good practice and what works now
  2. Lay governance and accountability
  3. Involvement in the generation, conduct and analysis of research
  4. Engagement in the wider endeavour.

The activity resulted in a rich output of data, which were analysed by examining common themes in the ‘narrative’ of each cloth.

Key recommendations are summarised as:

  • Promotion of existing research campaigns
  • Use of social media
  • The importance of valuing patients, carers and the public
  • Lay representation on research study management groups
  • Regional remuneration agreement, policies and rates.

There are clear examples of innovative practice and a desire to engage in partnership with patients, carers and the public; the challenge will be to measure the success of this initiative.

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Authors

Price ~ Fiona

Dr Fiona Price is Stroke Research Practitioner at Wye Valley NHS Trust. She has a background in nursing, education and research, completing her PhD on motivation in adult learners in 2013. Her research interest lies in qualitative methodologies, exploring individuals’ lived and living experience. She represents stroke on the West Midlands Public Involvement and Lay Accountability in Research working group.

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Wilde ~ Kate

Research Fellow, Wye Valley NHS Trust. Dr Kate Wilde completed her PhD in Pharmacy in 1994 from Manchester University, working for the university as a researcher before relocating to Stoke-on-Trent. Kate worked as a Research Fellow for Keele University until 2004, then became an NHS Clinical Governance Manager. She became Stroke Research Network manager in 2006.

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