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The silver screen for PPI: Methods for involving patients and the public in research through film

2014 Conference

Abstract: This session would be of interest to anyone wanting to use film as a means of accessing the opinions and experiences of patients and the public and presenting these to a broader audience.

Personal experiences are of increasing importance in biomedical research. Accessing this qualitative information has traditionally been done through questionnaires, but filmmaking techniques offer a particularly sensitive way of gathering first-hand knowledge.

In this session we will present a number of different ways in which the NIHR Moorfields BRC has been using filmmaking techniques to involve patients and the public in various aspects of biomedical research.

Since 2010 the BRC has organised patient events at which attendees are given the opportunity to speak to camera about any issue they feel is important to them, including their experience of healthcare services and how low vision affects their lives. This opportunity has proved extremely popular and insightful and has prompted a much wider use of film in the work of the BRC.

Structured around short film extracts, this hour-long session will cover how film can be used:

  • during patient events
  • in patient generated projects
  • to disseminate research projects
  • as part of the research process itself

Through these approaches we will explore: the practicalities of organising filmed interviews, the importance of lighting and sound, cataloguing and managing an archive, possible uses of filmed material for communication, and the ethical responsibilities of filming.

Some of the participants who have been filmed will also be present on the day and we hope for plenty of discussion throughout.

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