2014 Conference

Abstract: The theme of our poster will be James Lind Alliance (JLA) methods, using the example of the Mesothelioma Priority Setting Partnership as an illustration. We will explain how JLA methods invite patients, carers and clinicians to collaborate through steering groups and prioritisation processes and how this adds to the impact of the outcomes. We will cover:

  • An overview of JLA priority setting methods
  • The funding and motivation of the mesothelioma project
  • How patients have been involved with the steering group or represented by organisations which support patients and families
  • How patients and carers and patient support groups have been contacted to enable them to suggest initial questions or be involved in interim prioritisation
  • How the above, in collaboration with the views of health professionals, adds to the importance and impact of the outcomes.

We hope that people will learn about JLA methods, particularly relating to the Mesothelioma Priority Setting Partnership and that the poster will raise issues around collaboration of patients, carers and clinicians in setting research priorities.

Download poster

Authors

Maeso ~ Beccy

Senior Programme Manager, James Lind Alliance, National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre (NETSCC).

View all articles by this author

Whiting ~ Caroline

Assistant Programme Manager, James Lind Alliance, National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre (NETSCC).

View all articles by this author

« Go back