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Public involvement in health genomics: the reality behind the policies.

Avard, D., Jean, M., Gregoire, G. & Page, M.

International Journal of Consumer Studies, 34(5), 508-524.

Added: 28 September 2010

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ALPHA – a young people’s research advisory group
Involving young people in the design and delivery of health research
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‘If you build it they will come’
Using social media for public involvement in research
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Lessons from involving children and young people in service improvement
BRIGHTLIGHT study
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Involving children and young people in research: not the usual suspects
Review tunes into future priorities
NIHR/Wellcome Trust Clinical Research Facility Cambridge Children’s Non-Executive Research Board
Involving ‘seldom heard’ groups in HIV research
Involving young people through film and animation
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This is my story
Learning to listen at Parkinson’s UK
Welcome to the Autumn 2014 Newsletter
Welcome to the Autumn 2014 Newsletter
What I wish I’d known before going into public involvement research
The NIHR-wide learning and development group – a member’s view
Planting the public involvement seed early in researchers’ careers
Building Research Partnerships
Working together to develop public involvement training
Learning and development for public involvement: a personal reflection
The National Institute for Health Research (NIHR) strategic review of public involvement in research
Plain English summaries in National Institute for Health Research (NIHR) funded research
Parents advising researchers: Experiences from the ‘Beating Anxiety Together’ study
The changing face of public involvement in research teams
Inspiring involvement in research
Welcome to the Spring 2014 Newsletter
Around the table: Maryrose Tarpey
Around the table: Maryrose Tarpey
Around the table: Patricia Wilson
Around the table: Kati Turner
Around the table: Sophie Staniszewska
Around the table: Diana Rose
Around the table: Andrew Gibson
Around the table: Jonathan Boote
Criteria for inclusion
Around the table: Rosemary Barber
Criteria for inclusion
You’ve done the research – now what?
Merging worlds – the importance of support roles for patient and public involvement (PPI)
SCIE: Talking and walking co-production
Optimising adult mental health service configurations across health and social care
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Public involvement/ participation/ engagement in research
The lived experience of co-producing research
Launch of the Public Involvement Impact Assessment Framework
Clinical Research Ambassador Group
The Tourettes Listening Project
EQUIP: Building the skills of service users and carers to become involved in research
STOP Diabetes study
PPI in research – passing the town hall meeting test
Budgeting for involvement
Beyond the usual suspects, towards inclusive user involvement
Involving patients and the public in the work of the Medical Research Council Clinical Trials Unit
Public involvement in clinical trials
Public involvement and the REF ‘impact’ agenda: squaring the circle?
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What’s the evidence for? A critical reflection on the evidence base for public involvement in research
Patient involvement in setting research priorities in the Netherlands
University of Western Australia Consumer and Community Participation Program
The Center for Evidence-based Policy at Oregon Health & Science University: Working to engage US patients and stakeholders in health research
Patient and health consumer involvement at ZonMw
- The Center for Evidence-based Policy at Oregon Health & Science University: Working to engage US patients and stakeholders in health research
BPSU PPI Guidance for Researchers
The road towards PPI in research in Denmark
Newsletter Spring 2013 invoDIRECT
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All Trials Registered, All Results Reported
Mentoring service user researchers
Involving women with gestational diabetes
Putting research on everyone’s agenda
INVOLVE 2012 Conference – Facts and figures
Putting research on everyone's agenda
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Supporting PPI in paediatric research
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Becoming ‘them’ and remaining ‘us’ … or the road to ruin?
Community Researchers
Is there another ‘P’ to consider in relation to longitudinal birth cohort studies?
Involving people with communication disability in participatory research: the Friendship and Aphasia project
Resource for researchers templates
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The Past Caring Project: a carer-led narrative research project about carer bereavement
International Collaboration on Participatory Health Research
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Involving patients and the public in talking about medical research
Consumers take the initiative in patient and public involvement (PPI) training
Top ten research priorities relating after stroke
The patient inside and ‘outside’ the committee
The patient inside and 'outside' the committee
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Improving musculoskeletal research in North Bristol through public participation
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Patient involvement in combating sight problems
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