Abstract: The availability of organisational Patient and Public Involvement (PPI) strategic documents suggests that there is a commitment to work with a wider community to improve healthcare and strengthen health research. Drawing on our experience working with practitioners we noticed documents are not always available or written in a way a non-expert can understand. Proposed actions are not necessarily linked to a defined goal. This makes it difficult for those responsible for turning strategic goals into real action. People who could help, especially public contributors, may find it difficult to understand when, where and how their knowledge and experience could be best used. This led us to investigate further. We tested a framework adapted from 4Pi National Involvement Standards to methodically assess 15 documents from different healthcare organisations including those active in community care, research and education. We examined how document content is presented and organised. No single document met the full criteria for addressing the standards which are organised into five domains called principles, purpose, presence, process and impact. There was variation. We critique the value of these documents in practice and ask: ‘is there an alternative approach to construct PPI strategy to generate theory, capture learning and evaluate effectiveness at the same time?’ We open debate about alternative ways to show and evidence organisational practice and learning. We suggest an approach called ‘programme theory’ which has the potential to minimise tokenistic practice and connect learning about the ‘why’, ‘what’, and ‘how’ of PPI.
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Categories: journal article researchers research commissioners relevant to all service users evaluating user involvement staff in research organisations assessing the quality of involvement
Date Entered: 2019/11/06
Date Edited: 2019/11/06