Evidence Library

Title: “Getting to the Table”: Changing Ideas about Public and Patient Involvement in Canadian Drug Assessment.
Author: Katherine Boothe
Date Published: 2019
Reference: Journal of Health Politics, Policy and Law, 44 (4): 631-663.
Are service users or carers authors: No/Not Known

Abstract: Aim: This article asks whether 10 years of experience with public and patient involvement in Canadian drug assessment has affected participants' ideas about how it works. Method: The author reviewed the ideas of participants in the drug assessment process (members of expert committees, officials, and patient groups) as described in reports and hearings in 2005, 2007, and 2012 and also conducted interviews in 2014 and 2016. Findings: The different groups of participants agreed on the broad goals of health technology assessment (HTA) and the value of some form of public and patient involvement. But they disagreed on some important areas, because there’s much uncertainty about how public and patient involvement should be used in drug assessment and how much impact it has on committee discussions and recommendations. This uncertainly about the specific role for public and patient involvement is limiting the potential for opinions and attitudes to change. This has implications for current practice.

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Categories: health
impact on implementation and change
nature and extent of public involvement in research
reflecting on public involvement in research
journal article
Implementation and change

Date Entered: 2019/12/12

Date Edited: 2019/12/12

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