Putting it into Practice

Title: Patient and public involvement in doctoral research: Impact, resources and recommendations.
Author: Nia Coupe & Amy Mathieson
Date Published: 2019
Reference: Health Expectations, Epub ahead of print, DOI: 10.1111/hex.12976
Are service users or carers authors: No/Not Known

Abstract: Aim: To explore the impact of PPI on two health‐related doctoral research studies and to identify how PPI can be used meaningfully in this context. Method: The PPI processes included (a) involvement of two ‘Research Buddies’ who informed the research design and developed a booklet for family carers, (b) data analysis workshops with ‘Research Buddies’ to identify themes from practitioner interviews, (c) public and stakeholder involvement who informed the design of a data collection tool, and the design of an intervention to help people with obesity who attend weight loss groups. Findings: PPI enhanced both doctoral studies by helping with data analysis; problem solving and improving recruitment rates; improving data collection tools to make them more practical and appealing; designing interventions; and developing implementation strategies. Patient and public involvement was considered a rewarding experience for both researchers and PPI contributors. Conclusion: This paper demonstrates the value of PPI in doctoral research. The authors also present recommendations on how PPI could be included in future doctoral research, describing the resources required, PPI processes and the importance of involving PPI contributors in all stages of research.

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Categories: journal article
relevant to all service users
general principles of good practice
lessons from direct experience of involvement
General guidance on involving the public in research

Date Entered: 2019/12/19

Date Edited: 2019/12/19

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