Evidence Library

Title: From passive subjects to equal partners: Qualitative review of user involvement in research.
Author: Trivedi, P. & Wykes, T.
Date Published: 2002
Reference: British Journal of Psychiatry, 181, 468-472.
Are service users or carers authors: Yes

Abstract: This article describes a researcher's and user's experience of working together on a study which investigated the effects of group medication education sessions on in-patients in a psychiatric intensive care unit. They report on the challenges they faced at each step of the process. The involvement of the user researcher had a major impact on the focus of the study and its design and content. More attention was given to the quality of the education sessions in response to the user's input. In addition, some changes were made to the outcome measures used in the study - the emphasis was shifted away from patient 'compliance' and moved towards empowering patients, through increasing their knowledge about their medication.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to PubMed abstract

Related entry: none currently available

Categories: Designing research
Undertaking research
impact on research
impact on researchers
impact of public involvement
reflecting on public involvement in research
journal article

Date Entered: 2008/02/28

Additional Info: