Evidence Library

Abstract:

Aim: To demonstrate how consulting parents about the design of a study led to the successful delivery of a randomised controlled trial.

Method: Semi-structured interviews were carried out with 20 parents of children with cerebral palsy and other neurological conditions, asking them to choose between different trial designs and to talk about possible outcomes and their views about payment for trial treatment.

Findings: Involvement of parents helped design a trial which was acceptable to families and addressed outcomes that mattered to them. It also meant that the subsequent trial achieved excellent recruitment and retention rates.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to PubMed abstract

Related entry: none currently available

Categories: health
public health
social care
Designing research
impact on research
impact of public involvement
journal article
Recruitment

Date Entered: 2011/02/28

Date Edited: 2012/11/20