Evidence Library

Abstract:

Aim: To establish levels of consumer involvement in studies carried out by the UK Medical Research Council (MRC) Clinical Trials Unit.

Method: Semi-structured survey of staff responsible for studies included in a Unit Progress Report (2009).

Findings: 31% of the studies had consumer involvement mostly as members of trial management groups. Levels of involvement had increased over time.

Impacts on the research and researchers were identified as:

• improvements in study design and recruitment
• improvements in study promotion and dissemination
• improvements in study documentation
• improvements in decision making
• increased confidence amongst researchers in their studies.

The main challenges were lack of resources and time.

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Categories: health
Designing research
Managing research
Writing up and disseminating
impact on research
impact on researchers
nature and extent of public involvement in research
impact of public involvement
Recruitment
guidance/guidelines
lessons from direct experience of involvement
description of involvement in a research project

Date Entered: 2012/03/20

Date Edited: 2012/11/28