Evidence Library

Abstract: Aim: To answer the following questions: (1) What is the best way to identify patient representatives? (2) How to engage them in designing and conducting research. (3) What are the observed benefits of patient engagement? (4) What are the harms and barriers of patient engagement? Methods: A literature review. Findings/ recommendations: 142 studies were reviewed. There were no particular methods recommended in the literature for either recruitment of patients or their engagement. The benefits were found to be: higher recruitment and retention rates; help with securing funding; improving research design; choosing relevant outcomes; helping with dissemination. The harms and barriers were found to be the need for extra time and funding, and concerns about engagement being tokenistic.

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Categories: health
public health
social care
Designing research
Writing up and disseminating
impact on research
impact on researchers
impact of public involvement
journal article
Recruitment

Date Entered: 2015/04/27

Date Edited: 2015/04/27