Evidence Library

Title: Core principles for involving people with dementia in research: innovative practice
Author: Scottish Dementia Working Group Research Sub-Group U K
Date Published: 2014
Reference: Dementia 13, 5, 680-5
Are service users or carers authors: Yes

Abstract: The Scottish Dementia Working Group Research Sub-group is part of the Scottish Dementia Working Group, an internationally renowned campaigning group of people with dementia. We co-created our core principles for involving people with dementia in research between September and December 2013. The principles address six areas: (i) how people with dementia are valued and involved in research, (ii) lived experience as valid knowledge, (iii) physical and emotional safety, (iv) accessibility of all aspects of research, (v) training for researchers and (vi) the impact of our experiences of time on research processes. Through our core principles, we challenge researchers across all disciplines to re-consider how we and other people with dementia are involved in research as well as how knowledge in dementia research is created.

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Categories: health
public health
Identifying topics, prioritising and commissioning
Designing research
Managing research
Undertaking research
Analysing and interpreting
Writing up and disseminating
Evaluating
journal article
guidance/guidelines
Recruitment
Implementation and change
lessons from direct experience of involvement

Date Entered: 2018/09/20

Date Edited: 2018/09/20

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